Mia didn't leave the hospital on Wednesday but she did get out on Thursday. She is on oxygen at night and TPN (IV nutrition) at night. She went in on Saturday and received a transfusion of platelets. We had another appointment today, fully expecting to need more platelets. She didn't! We will check again on Wednesday. If they are higher than today, 17, then she will be fully engraphed. Tonight is her last night for TPN. She has been eating little tiny bits everyday, but not enough to supply her with enough calories. She still throws up daily. We are going to try letting her just eat normal. The main thing is to keep her from losing any weight, and more importantly to keep her from getting dehydrated. If we are not successful, then she will go back on a feeding tube.
We loved having everyone here for a couple of days. They arrived on Wednesday afternoon and left Saturday morning. The only problem was that we couldn't actually do anything because Mia couldn't go anywhere. As nice as it was to have everyone, I was happy to have some quiet when they left. The very small apartment made for some close quarters. Also knowing that it is only a couple more weeks makes it bearable.
Nov 21. Excited about going home
Thanksgiving Day. Ready to go home
A card from CCI
More presents
Decorating Gingerbread Men, Heidi and Jessica
Allan and Andrew
Jessica
Jessica, Heidi, and Mia
Hanging out today.
Jennifer,
ReplyDeleteI am not sure the whole story behind this blog, but it is clear that your faith and hope are a huge blessing to your daughter (and your entire family). She is beautiful and I hope she knows and believes that! May God continue to bless you as you work through this huge challenge!
Josh