Monday, October 14, 2013

Post Transplant Day 55

Mia was admitted to the hospital today.  She is retaining fluid (her weight was up 10 pounds since last monday), her blood pressure was up, 130/90, her breathing is fast and her liver function was up.  However her kidney function was fine so they think it is an infection of some sort. Her bilirubin is also up. She also needed more red blood cells today.  She has a rash that could be graph versus host.  All in all she is not feeling to hot:(  Hopefully a cuople of days in the hospital will have her feeling better.

Wednesday, October 9, 2013

Day +50

    Today is day 50!  We are  halfway there.  We are in our 10th week here and we have 7 weeks to go.   Mia had a harder week.  She slept a lot so when we went in for our appointment on Monday it was no surprise that she needed red blood cells.  She got two units.  She is also back on oxygen 24/7.  Her nausea has really been bothering her.  Sometimes she actually throws up but mostly she just retches for five minutes.  We had a visit from Aunt Linda and Uncle Steve on Monday.  It was very nice. On Sunday we went to Great Grandma Jackman's and watched the second session of conference.  There is not much else to say.  Our lives are boring and that is a good thing.  Can't wait until we get to go home.  I would love to go home early but I am pretty sure there will be no convincing the doctors that we should.

Mia's toes sporting BSU colors!!

Wednesday, October 2, 2013

Day + 43

So Mia is doing better.  She is off of oxygen during the day and only on 3/4 of a liter at night. One of her IV meds has been cut down from twice a day to only once a day.  Her platelets are coming up and her other counts are doing well.  We also are unhooking her from her feeds for four hours a day to give her a chance to be free!  Also we hope she will start feeling hungry and want to eat.  She still has a bunch of meds she is on and sometimes it is hard for her to take them all.  W still get out each day.  Our favorite place to go is Liberty Park.  We sit and watch the people.  Mia loves to watch kids playing.  

On Monday she wanted to swing and they have these fabulous swings for handicap children.  She enjoyed that. 
 I have been getting lots of sewing done.  Most of it is for Christmas so there won't be any pictures, but these are the girls' Halloween costumes.  
 Jessica is Belle and Heidi is Dorothy.
Some have asked for our address.  Sorry it has taken so long to get on here.We are at the Ronald McDonald House  935 E South Temple SLC, UT 84102