Tuesday, November 12, 2013

Post Transplant Day 84

Things were going pretty well.  But last week at her appointment on Wednesday, we found out her potassium was really high.  According to the Nurse Practitioner it was "scary" high.  The doctor said they were in a "minor" panic!  High potassium can lead to heart arrythmia which can potentially be fatal.  Not something to be taken lightly!  In the end she was admitted to the ICU.  She received several meds, one to protect her heart, one to help her pee off the potassium and a couple others to protect her kidneys.  She also received several 1000 ml bolus' of fluid to help flush the potassium out.  She only spent 8 hours in ICU and then was moved up to the Immune Compromised Floor where we usually are.  Her potassium came down to an acceptable level.  In the meantime, it was decided that her heart medications along with her cyclosporine were the most likely cause of the high potassium.  She got to exchange 4 of her drugs for one.  I like that!  The one can cause low blood pressure so we have to watch for that.  She was released from the hospital on Friday.

We had our regular appointment yesterday.  Everything is still okay.  Her potassium is still higher than normal but is okay as far as the doctors are concerned.  Her blood pressure is high, but the BMT doctors like it.  The cardiologists do not.  They would prefer it was lower since she has heart issues.  We are getting all of her tests scheduled next week so we can go home!  She has a Bone Marrow Biopsy on Tuesday and a PET Scan on Wednesday!

On Saturday we went to Temple Square.  It was another beautiful fall day.

 Mia liked the Christus the best

Sunday, November 3, 2013

Post Transplant Day 75

The last time I posted Mia had been admitted to the hospital because she wasn't doing very well.  She went in on a Monday and was released on Thursday.  Unfortunately she went back into the hospital the very next day.  She got out on the next Monday.  By then she was really feeling a lot better. Even smiling her beautiful smile for us.  Since then she has been doing great! She is off oxygen during the day and on only 1/2 a liter at night.  We have cut  back on her tube feedings, so she is only getting them over night.  This allows her to feel hungry during the day and eat.  She is off of her IV meds except for her nightly fluids. She has not had any problem with nausea and her diarrhea is gone!

Last weekend Casey bought the kids to visit.  We had a great time!  On Saturday we took them to This Is The Place Pioneer Village.  They had trick or treating for the kids and a story and a costume parade. Because Mia tires so easily we borrowed a wheel chair  from the Ronald McDonald House and Andrew pushed her. 

Friday before everyone got here the Ronald McDonald House was celebrating its 25th birthday.  They had food and cookies and I got to take a tour of the new facility they are building.  It should be open in January and then they will close down the current house and completely remodel it.  Ronald McDonald helped Mia decorate her cookie.

On Monday, Mia and I went to a place called Gardner Village.  It has all these little shops and they were all decorated for Halloween with lots of witches.  We had a cup of hot chocolate.

Mia doesn't have her tube in because she threw it up the night before and we tried a day without it in to see how she would do.

Yesterday was another beautiful fall day.  We were tired of being cooped up so we took a drive out the the Salt Lake Marina

 On our way back into Salt Lake we went through Magna again and found the house we lived in 32 years ago.  It is a duplex and we lived on the left.

We only have three weeks left and we are so excited to go home.