The last time I posted Mia had been admitted to the hospital because she wasn't doing very well. She went in on a Monday and was released on Thursday. Unfortunately she went back into the hospital the very next day. She got out on the next Monday. By then she was really feeling a lot better. Even smiling her beautiful smile for us. Since then she has been doing great! She is off oxygen during the day and on only 1/2 a liter at night. We have cut back on her tube feedings, so she is only getting them over night. This allows her to feel hungry during the day and eat. She is off of her IV meds except for her nightly fluids. She has not had any problem with nausea and her diarrhea is gone!
Last weekend Casey bought the kids to visit. We had a great time! On Saturday we took them to This Is The Place Pioneer Village. They had trick or treating for the kids and a story and a costume parade. Because Mia tires so easily we borrowed a wheel chair from the Ronald McDonald House and Andrew pushed her.
Friday before everyone got here the Ronald McDonald House was celebrating its 25th birthday. They had food and cookies and I got to take a tour of the new facility they are building. It should be open in January and then they will close down the current house and completely remodel it. Ronald McDonald helped Mia decorate her cookie.
On Monday, Mia and I went to a place called Gardner Village. It has all these little shops and they were all decorated for Halloween with lots of witches. We had a cup of hot chocolate.
Mia doesn't have her tube in because she threw it up the night before and we tried a day without it in to see how she would do.
Yesterday was another beautiful fall day. We were tired of being cooped up so we took a drive out the the Salt Lake Marina
On our way back into Salt Lake we went through Magna again and found the house we lived in 32 years ago. It is a duplex and we lived on the left.
We only have three weeks left and we are so excited to go home.