Just an Update

Mia is working on her second round of chemo. This drug, romedepsin, is given on a 28-day cycle. She receives a four hour infusion on days one, eight and fifteen. Today is day eight of her second cycle.  The first round caught us off guard. We were unprepared for the vomiting and diarrhea. Because of that she was dehydrated and lost a lot of weight. This time around we are ready.  The first week has been better. She has still experienced some vomiting and diarrhea, but not anything compared to the first time. She did have a blood transfusion last week and she will get another today. She also got a platelet transfusion on Saturday because her gums were bleeding quite a bit.

So today is another long day. We came in expecting to get chemo and a four hour IVIG infusion. But Mia's hemoglobin is down so we will also be getting red blood cells.  She had an EKG when we got here so now we are waiting on the cardiologist as well.  Mia has a heart murmur that seems to be getting more pronounced. Also her blood pressure is always on the low side while her heart rate runs on the high side. Just a couple of things to keep track of on top of everything else.

We haven't heard yet on the transplant but it is a little early still.